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אהרון יואל בן מירלא
Aharon Yoel ben Mirlah
Entered: 2009-01-07         Age: 23  עמו"ש
Updated: 2014-02-09
Unique identifier: Monsey
Status: Inactive
Listed in the following lists:
Monsey - Monsey Trails 6:45am to Wall St
Monsey - Cong. Ahavas Yitzchok
Monsey - Forshay
TehillimRing History: none
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UPDATES:
2013-02-25 09:58:01Aharon Yoel's situation has unfortunately deteriorated. He is now starting with another neurologist. We daven and hope for a Refuah.
2012-05-06 11:33:50Aharon Yoel still has seizures on a daily basis and endures much pain in his head. He's very frustrated with his situation. All we can do is daven.
2011-10-24 08:10:57Aharon Yoel still has seizures on a daily basis and endures much pain
2011-08-08 06:54:35Most doctors discourage Vagal nerve stimulator. One frum doctor strongly encourages it. He has 20 years experience. Rav Chaim Kanievsky said not to do it.
2011-05-22 13:12:47The doctors have no answers or advice at this time. We just made a breakfast reception for Mikvah USA as a z'chus refuah Sh'laima.
2011-04-11 07:22:19The findings from IGENIX labs in San Francisco, CA is that it's not Lyme disease. We're back to squire one.
2011-02-28 06:24:59Numerous blood tests were done and interpreted by various specialists in an effort to reach a diagnosis for Aharon Yoel's seizure condition which is uncontrolled in spite of heavy anti-convulsant medications. The findings were Epstein Bar Virus in an IGG state but interpreted as still giving after-shocks as well as Mycoplasma Pneumonia in an active acute state which is indicative of Lyme disease in the lungs. Testing is being conducted at IGENIX labs in San Francisco, CA to determine if Lyme disease is buried in the tissues due to the length of time elapsed since the original symptoms appeared on Dec 5, 2006.
2011-01-24 08:23:45He was recently diagnosed by a specialist in Westchester with Lime desease. He's being treated with antibiotics. We were told it takes a while to see results. He still has seizures on almost a daily basis.
2010-10-04 07:17:53Diagnosed with Encepholitis which effected his brain. He has seizures on a daily bases which are not being totally controlled by medication. We are trying different specialists.
2010-06-04 09:24:07Diagnosed with Encepholitis which effected his brain. He has seizures on a daily bases which are not being totally controlled by medication. His petuitary gland was also affected.
2010-04-26 09:37:46Diagnosed with Encepholitis which effected his brain. He has seizures on a daily bases which are not being totally controlled by medication. His petuitary gland was also affected.
2010-02-08 06:05:00Still having seizures on a daily basis as a result of presumed encephalitis.
2010-01-04 06:21:36Still having seizures on a daily basis as a result of presumed encephalitis.
2009-10-26 06:53:22Still having seizures on a daily basis as a result of presumed encephalitis.
2009-09-21 06:28:10Diagnosed with Encepholitis which effected his brain. He has seizures on a daily bases which are not being totally controlled by medication. His petuitary gland was also affected.
2009-01-07 08:09:17Diagnosed with encephalitis. Has seizures daily. Has been to top doctors who can't help control the seizures.
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